Friday, April 16, 2010


TGIF! "thank God it's friday" or "thank goodness it's friday" right? i'm not leaning that way today. while that may be the acronym and they've developed a high calorie/high fat restaurant concept around it, it's not what the Williams family is feeling today. gavin has been having a rough couple of days and i got a call from the NICU this afternoon that on his blood tests it looked like he was showing some sort of infection brewing so they have now begun him on an antibiotic to fight that and hopefully calm him down. he has become less resistant to touches and moves of late and that can certainly be due to the fact that the little guy doesn't feel well. in order to keep him more comfortable they have put him on a sedative drip rather than giving it to him every few hours. his lungs continue to be a little more hazy than yesterday and his heart rate remains slightly elevated - probably stress and rightfully so! we are discouraged by this news and as the Psalmist wrote in Psalm 67 "may Your face shine upon us", we are wondering why it seems God has rather been doing the opposite. feelings are delicate. we all have them and they all play into our decision making on some level or another. they can be so good and yet so bad in some cases. i'm just a man, trying to take the best possible care of his family and wanting to do whatever i can to take the pain away from my wife and my little boy and yet there isn't anything i can do.
tracee just got dropped off at the ER at Shea as she is going to have a blood patch procedure done by an anesthesiologist (her doctor's husband) at about 4:30 to try and solve the issue with her horrible headaches. ever since the spinal she was given to perform the C section, she has dealt with major headaches that really leave her incompacitated. the goal is to draw some of her own blood and reinject it into the spinal column and sort of block the leak that is occuring. we are told that this should provide instant relief for her and so we are praying for wisdom for the doctors and surgeons and that it will be a quick and easy procedure and deliver the results we are looking for. my heart goes out to tracee as she wants so desperately to be back to 100% and has been operating at about 30%.
somewhere in the mix i try and work but i tend to get caught up with doing things like this and doing the best i can to manage information that is given to me by doctors, nurses, specialists, etc and then pass it along to our faithful followers and family.
today has been pretty crappy and frustrating to have things happen to tracee and baby. it really is hard at times because most of these things are like the fraction of a percent of a percent deal - and we get hit with them! maybe we should play the lottery?
pray for a continued calm in the storm for us and for our spirits as they have been stepped on so many times along the way. pray for tracee's procedure to go perfect and FIX the problems and the gavin will RESPOND WONDERFULLY to the treatments.
finally, to all of you parents: hug your kids. love on them. tell them that you love them and that you are thankful for them. we can't hold gavin and we can't hug him. we get to tell him through some plexiglass that we love him and are thankful for him but it's just not the same is it? you never know what you have until you don't have it. so...when your kid is crying or acting up or running when they shouldn't - just stop and be thankful for their ability to do so. thank God for those good and perfect gifts.



  1. Reggie and I are praying with all we have... I know the ministry of music is so helpful for times like these... I held on to these lyrics when I didn't know what else to say...or do. You already know he love you guys and hes with you just keep holding on. Love you guys.

    Lord I'm tired
    So tired from walking
    And Lord I'm so alone
    And Lord the dark
    Is creeping in
    Creeping up
    To swallow me
    I think I'll stop
    Rest here a while

    And didn't You see me cry'n?
    And didn't You hear me call Your name?
    Wasn't it You I gave my heart to?
    I wish You'd remember
    Where you sat it down

    And this is all that I can say right now
    i know it's not much
    And this is all that I can give
    yeah that's my everything

    I didn't notice You were standing here
    I didn't know that
    That was You holding me
    I didn't notice You were cry'n too
    I didn't know that
    That was You washing my feet

  2. Such incredible trials your family is facing. The blood patch really should provide Tracee with instant relief. I pray that will happen and she will get back to 100%.

    I know what you are going through and there really aren't words to describe how painful it is. I am so sorry and pray that it eases for you whole family.

    I continue to say Tehillim for your family, especially your Gavin. One of my favorite, that I said when Avi was in the NICU was 128.

    1 Blessed are all who fear the LORD,
    who walk in his ways.
    2 You will eat the fruit of your labor;
    blessings and prosperity will be yours.
    3 Your wife will be like a fruitful vine
    within your house;
    your sons will be like olive shoots
    around your table.
    4 Thus is the man blessed
    who fears the LORD.
    5 May the LORD bless you from Zion
    all the days of your life;
    may you see the prosperity of Jerusalem,
    6 and may you live to see your children's children.
    Peace be upon Israel.

    Try to take care of yourself. If there is anything I can do....

    Raquel Schnitzer

  3. Jeramy, what an awesome, strong man you are. So much has been put on your plate with the two you love most being so fragile. You have been a pillar of strength for both. I am so proud of you and have such respect for your faith and your love of your wife and child. God bless you all. Tina

  4. Jeramy, the three of you are in the thoughts, hearts and prayers of so many, many people. Your generosity with information and your thoughts and feelings is so helpful to all of us, an so greatly appreciated. You have a true talent for sharing. I pray for peace, love and health for all of you.

  5. Precious Tracee~ We are thinking of you this afternoon and pray that the headaches are gone and that your body will be able to heal more quickly. We were so sad to see you needed an additional procedure. This is a time in life to be a taker and asker then let the rest of us pick up the details for you. As you can see, there is plenty of us that will do anything so all your time and energy can go into Gavin & Jeramy. Keep the Faith~
    Love you sweet Friend!
    Nicole A.

  6. Thanks for the reminder to appreciate and not take our kids for granted! My son Simon and I have been praying for you guys every night... as I do now: May God grant you his Spirit in POWER today! May He keep you strong and pick you up out of the muck and the mire. God send your HEALING to this family and bring the day when they can hold and cuddle this sweet boy!

    Thanks again for your encouragement even when things suck! You guys are teaching us all a lot about faithfulness and trust. God Bless you guys.