rain, rain go away

i heard that the weather was nice today. from the window i didn't see any rainclouds or evidence of wet streets, but in here, we were singing that little rhyme "rain rain go away, come again another day." tracee woke me up this morning at 5:50 scared about some twitching she was experiencing due to a mild epileptic condition that she has. she hasn't had any issues in about a year but they are brought on by stress, fatigue and anxiety. hmmmm...have we had any of that? i need to be better about making sure she gets the rest she needs but quite frankly i was so excited to be getting her back to normal that i didn't think much about it. so we shut it down hard core here today - no visitors, and signs posted on the door stating "mom sleeping." her and i both did so. i was able to lay in bed with her today and both of us got the best sleep we have had in weeks. even though we won't be bringing gavin home with us, we are excited to begin to get some things back to normal and having a chance to live again.
it looks like gavin will continue to be on the oscillator for another week or so but they were able to bring down some of his oxygen levels through that machine and still keep his oxygenation rate in the range they want which is exciting for us! he isn't on any more dopamine and was able to get his first feeding today (as i said, a micro amount) and that seemed to go ok. they only introduce food to their little guts at this age to begin to get them ready for some real nutrition later on. tracee was able to provide his feeding! she was able to get a couple of mL's into a bottle but that is all it takes! a couple of nurses were telling me how adorable they thought he was and i agree. :-)
one of the moms in there today was telling me about her baby who is one of gavin's podmates. he is 36.5 weeks old now but was born at 26.2 and was 2.5 pounds. he now weighs 5lb.14oz. although he wasn't really growth restricted like gavin, it is exciting to see how much he has grown and that he is in a position to go home in a few weeks after being in there since January 26th.
gavin remains under the spotlight and his lungs are still hazy on the xrays, but we remain steadfast in the Lord and rejuvenated by those who provide scripture to us and words of encouragement. i pray over his little giraffe incubator everytime i go and visit him. every little detail about him is perfect. God didn't make any mistakes. He is now using gavin to grow tracee and i. my son is ministering to us and that isn't exactly how we had planned it. nevertheless, we desire to just take it day by day. you can specifically pray for his lungs to open up some more and that he will continue to tolerate his feedings. you can pray for his blood pressures and an upcoming blood transfusion that he will most certainly need. you can pray for tracee's improved health as we begin to approach a discharge date and time. you can pray for rest for me and calm in the storms of my family. thank you dear friends and others that we don't know who read, it is an encouragement to us.
God bless you all.

jeramy