well...we continue to ride the rollercoaster. up and down and around and around. that just seems to be the typical stint in the NICU for a baby like gavin and for being as young and premature and sick as he has been. there are a lot of things to be very thankful for though. he is doing phenomenally well on his feeds and is up to 20ml's of food every 3 hours and has now gone to 26 calorie which is a fortified feed. the doctor explained to tracee yesterday that the equivalent of what he is getting would be like me ingesting 15,000 calories a day! his little body is clearly needing it as he did drop 10 grams overnight so he sits just under 900 grams.
please pray, pray, pray for his lungs still!! he has had what they call brady's over the past 3 days which are due to some bronchio spasms occuring where his airways just shut down and he needs to be bagged to inflate his chest and get him back on track. this is a very scary thing for us and i'm sure for him as well. please pray for our peace as we continue to trust in God's healing for gavin and for his lungs and freedom from these episodes.
gavin is scheduled to get some blood today and then have his pic line taken out later on. he received his last dose of the steroid this morning and we PRAY that this will be enough to get him over the hump!! he is such a sweet boy and already has an amazing personality and a drive to live and pull through. we get so tired of having to go through this over and over again - we don't want to hear talk of any more steroids!
please stand with us in these prayer requests. we know that there is a lot of power in prayer!
jeramy
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Tracee & Jeramy~
ReplyDeleteMay God bless you with this new and precious song called "A Mother's Prayer" Tracee, I stand with you and pray this over Gavin today!
I enclosed the lyrics too, they are beautiful~
Love you Guys!
Nicole Asmus
I am only a phone call, anytime!! Big Hugs!
http://www2.godtube.com/featured/video/mothers-prayer-rachel-aldous-happy-mothers-day-baby-lullaby-dedication-song
Rachel Aldous A Mother's Prayer (hannah's Song) Lyrics
A Mother’s Prayer (HANNAH'S SONG) Words by Rachel Aldous
Music by John Mandeville
Verse:
My sweet baby on loan from above
no better treasure could I more love
I stand here beside your bed as I pray
I lay my hand on your head and I say:
Chorus:
May you grow up to serve Him
all of your days
May He lead you and guide you
in all of your ways
May He bless your future with
friendships that last
May you cherish your youth
and not grow up too fast
Verse:
I stare in wonder at your tiny frame
Just to think God knows you by name
He knows every hair on your head
He knows your thoughts before they are said
Chorus:
May you grow up to serve Him
all of your days
May He lead you and guide you
in all of your ways
May He bless your future with
friendships that last
May you cherish your youth
and not grow up too fast
Prayer:
May God grant you peace
in the midst of a storm
May God give you strength even
when you’re forlorn
May you answer the door when
Jesus comes knocking
May wisdom guide when
your mouth is talkin’
May discretion protect you
and keep you pure
May you never stumble
or fall for a lure
May your heart remain humble
to the very end
May uprightness and truth
be what you defend
May the world not ensnare
or change who you are
May the light that's within you
shine like the stars
May angels surround you
body, spirit, mind
May favor and peace be yours to find
May rejection and pain
never reach you
May your spirit grow bold
for what you’re called to
Chorus:
May you grow up to serve Him
all of your days
May He lead you and guide you
in all of your ways
May He bless your future with
friendships that last
May you cherish your youth
and not grow up too fast
Singing:
As you rest in God’s care I will rest too
Knowing that Jesus is watching over you
Amen
Hannah speaks: I love you, Mommy…
They that wait upon the LORD, HE shall renew their strength. They shall mount on wings as eagles. They shall run and not get weary, they shall walk and not faint. Isaiah 40:31
ReplyDeleteIt doesn't matter what it looks like. If you are trusting GOD for Gavin, believe what HE says.
I'm sorry your baby is so sick. I wanted to share with you Sofia's story. I don't know these people, but Jessica has APS (Antiphospholipid Antibody Syndrome) which is what my youngest daughter has. It is a story of hope....Sofia weighed 1 pound 4 ounces....now she's up to 10 pounds! www.helpjessicaandsofia.com May God surround you and yours with his angels and love.
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